This is one of the kids whose profiles bother me the most - kids that in the US would have surgery shortly after birth, and then go on to live totally normal lives. But in his country, he can't have that surgery - either because there is no money to pay for it, or because they have no doctors with the necessary skills. I don't know which is the issues in Owens' case, but he needs surgery soon to prevent permanent damage. Even more than many of the other kids on Reece's' Rainbow, he really needs a family that can get him the appropriate medical care.nOwen (egxb-3)
Boy, Born December 2007
This darling little boy is waiting for his forever family, and we believe his condition to be one called Saethre-Chotzen Syndrome.
Also known as Acrocephalosyndyldactyly Type Chotzen or Saethre-Chotzen Syndrome. Chotzen Syndrome is a dominant genetic condition. They have a tower-shaped skull (acrocephaly), fused fingers and/or toes (syndactyly), asymmetric face, widely spaced eyes, droopy eyelid (ptosis), strabismus (crossed or “wall-eyes”), beak-like nose, small upper jaw, and jutting out lower jaw (prognathism). Some plates in their skull close early. This is called craniosynostosis. Often people with Chotzen Syndrome are mildly hard of hearing. Sometimes they’re unusually short. Occasionally the closing of the plates in their skull can compress their brain and slow their development. Sometimes boys with Chotzen Syndrome have undescended testicles.
$3061.50 is available towards the cost of my adoption!